Go Fund Me Campaign for SC Girl with Sanfilippo Syndrome - myfoxcarolinas.com

Go Fund Me Campaign for SC Girl with Sanfilippo Syndrome

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  • Barbara LashMore>>

  • Barbara Lash

    Barbara Lash

    Tuesday, April 8 2014 4:34 PM EDT2014-04-08 20:34:28 GMT
    I took a break from the business to start a family and build a Sports Media consultancy, but never lost the “bug.” 
    I am ecstatic to be back in the Carolinas, and back on air! I spent fifteen years in the broadcast new business before taking a break to start a family, write a book and build a Sports Media consultancy. While I certainly enjoyed my new directions, I never lost the “bug.”
  • Rep. Jim Clyburn Talks About His New Book

    Rep. Jim Clyburn Talks About His New Book

    Thursday, August 28 2014 7:43 PM EDT2014-08-28 23:43:26 GMT
    U.S. Congressman James E. Clyburn (D-SC) has written a new book entitled Blessed Experiences: Genuinely Southern, Proudly Black.  Clyburn told Barbara Lash that he hopes his book will be a learning and inspirational tool for others.
    U.S. Congressman James E. Clyburn (D-SC) has written a new book entitled Blessed Experiences: Genuinely Southern, Proudly Black.  Clyburn told Barbara Lash that he hopes his book will be a learning and inspirational tool for others.
  • Parent Coach Amber Ardrey Helps Parents Adjust to the New School Year

    Parent Coach Amber Ardrey Helps Parents Adjust to the New School Year

    Monday, August 25 2014 8:17 PM EDT2014-08-26 00:17:00 GMT
    Parenting Coach Amber Ardrey stopped by our WJZY studio today to talk about parents adjusting to the new school... and letting us know how much of our kids' success depends on us.
    Parenting Coach Amber Ardrey stopped by our WJZY studio today to talk about parents adjusting to the new school... and letting us know how much of our kids' success depends on us.
Four-year old Eliza O'Neill has Sanfilippo Syndrome... and will slowly deteriorate and die without proper treatment.

There's already a cure, that is just now being produced, thanks to money raised through a Go Fund Me "Saving Eliza" Campaign.

Now Eliza's family is launching a new phase of the campaign to start clinical trials with the drug.

The ultimate hope is that Eliza can be one of the kids to take part in the trial... and do so in enough time to save her life.

Barbara Lash spoke to the family about the next phase of their fundraising effort to raise a million bucks in the month of June.

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